Coolmillsate

The 'Cool Million'

The Raynaud’s & Scleroderma Association (RSA) has launched an appeal to raise a million pounds between 2010 and the end of 2012, to fund research projects into Raynaud's and scleroderma. There is no cure for either of these conditions and research is essential. To find out more about this ambitious project and how you can help us to achieve our goal click here. To date we have raised over £450,000 towards the target but we still need your help.

House of Commons Reception

On 1st February 2012 the RSA will be holding a reception at the House of Commons to celebrate the RSA's 30th Anniversary. Our President Professor Dame Carol Black will be speaking as well as the RSA's local MP, Fiona Bruce. The aim of the event is to raise awareness of these conditions and of the charity and to celebrate the RSA's achievements over the last thirty years.

Anne's Pedalo Challenge

On Monday 11th June 2012, RSA founder and CEO Anne Mawdsley is going to pedal a pedalo on Lake Windermere for 5 miles from Fell Foot Park (National Trust) to Ferry Nab with actor Don Gilet, who lost a schoolfriend to scleroderma last year. The money raised will be used for the RSA's 'Cool Million' appeal which aims to raise one million pounds for research by the end of 2012. To find out more and to sponsor Anne, please click here.

We need you

There are many ways you can help us to raise vital funds and create awareness of Raynaud's and scleroderma. It is only with your help that we can continue our vital research projects and provide support and information. If you have a fundraising idea we can help you achieve your goal. To view our fundraising page click here.

Help is at Hand

Raynaud's can mean agony for the 10 million people in the UK who have the condition. For sufferers any slight change in temperature, such as air conditioning can cause the extremities of the body to become starved of blood. This can make fingers (and toes) turn white, then blue and finally red, when the blood is restored causing immense pain.

'SO RARE' Card

The Raynaud's & Scleroderma Association (RSA) has recently launched a handy pocket-sized 'SO RARE', information card to highlight three of the early symptoms of scleroderma. These include sore swollen fingers, Raynaud’s Syndrome and reflux/heartburn. Identifying these symptoms is essential as early diagnosis can save lives. To read more click here.

Donations

Your support can make a difference. Our work is totally dependent on donations. Help us to find a cure and improve the lives of everyone affected by these conditions. There are 10 million people in the UK with Raynaud's. If everyone gave £1.00 just think how much research we could fund! Any contribution which you are able to make will be very much appreciated. Click here to visit our donations page

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Raynaud's & Scleroderma Association

Welcome to the new Scleroderma website part of the Raynaud's & Scleroderma Association, a national charity and self help organisation, committed to supporting people who have these conditions and their carers.

Scleroderma means hard skin but the hardness is not limited to the skin - the internal organs and their blood supply may become damaged. Scleroderma can be devastating not only for the person who has the condition but also for the families concerned. We offer a very personal service, always available to answer questions, offer advice, reassurance and support. Further advice can be obtained through the nurse advice lines available to members and part funded by the Association.

Raynaud's is a common condition in which blood is prevented from reaching the extremities of the body, mainly the fingers and toes, on exposure to the cold or any slight change in temperature. A small number of people who have Raynaud's also develop scleroderma, a disease which affects the connective tissue.

Our aims are to promote a better communication between doctors and patients, to disseminate information and to raise funds for research and welfare projects. Research is essential if we are to determine the cause and find better treatments in the future. Newsletters are issued quarterly giving information on research and treatments which are available. Publications on Raynaud’s, scleroderma and related conditions are available from the organisation, details of which are on this website. You can also visit our free support network here where you can learn from other people's experiences and add your own to the mix.

In order to continue our work we rely on donations. Every penny donated goes towards funding research and welfare projects. There are 10 million people in the UK with Raynaud's. If everyone gave £1.00 just think how much research we could fund!

If you wish to make a donation please click the donate button at the top of this page.

Pages from this website can be downloaded. Leaflets are available by sending a 2nd class stamp to the Association for each leaflet requested (UK only). Our support network, delivered through HealthUnlocked, is also free and we welcome your comments and questions. It's a great way to learn more from each other so please join. To 'like' the RSA Facebook page click here.

For a free information pack call 0800 917 2494 or send an SAE to:

RSA, 112 Crewe Road, Alsager, Cheshire ST7 2JA

Alternatively, email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

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