If so we would like to hear from you, as we are trying to build up a picture of how this problem affects people. Hopefully, this will make it easier to treat.
Below is one example but you may have different symptoms:
It can happen at any time when eating. A pain develops in the chest, around the breastbone. which is the signal to stop eating. Hiccups sometimes follow and then the sudden urge to retch. You don't feel sick but know that you need to get to the toilet quickly as clear liquid builds up in the mouth. On reaching the toilet it pumps out - mostly saliva in big bubbles but sometimes also followed by food or drink.
The strange thing is that we are advised to drink water but that just seems to sit on the 'blockage' and is the first to come back. Some days are fine and although only eating small meals, there is no way of knowing whether this temporary 'blockage' is going to happen. It is embarrassing in company and really frustrating when you are enjoying a meal and have to leave the table. The whole process can bring tears to your eyes and you only know it is better when the pain goes away and you are back to normal.
If you have any comments or suggestions on either of the above, email This e-mail address is being protected from spambots. You need JavaScript enabled to view it or write to us. Only by sharing our experiences can we endeavour to help the researchers in finding better treatments.